My days in ICU were driven by routine and soon became monotonous. Every morning, I was taken for a shower. This was always very stressful and exhausting, and sometimes painful. I was rolled to and fro in bed so that a sling could be placed under me. The sling was then attached to a hoist…
Sometimes people judge, and label parents as reckless. As parents, we make decisions that are thought out – we choose not to wrap out kids in cotton wool. Each of our children’s personalities suggests they will live lives of adventure. As parents, we believe we have a limited period of time to teach them to…
I’m in two minds about posting this. I feel like it doesn’t really have a point. But, it’s all part of my journey so decided to include it. None of us can really plan for the future. We don’t know what’s going to happen tomorrow, next week, next year. I know all too well that…
Within just days of my stroke, my Dad had gone in to overdrive – reading everything he could find on brainstem strokes and locked-in-syndrome. He was not willing to accept the prognosis given to me by the medical team. Dad soon came across a young woman in the UK who had suffered a brainstem stroke…
From as long ago as I can remember, I wanted to be a Mum. I completed high school at a highly academic girls school. Many of my classmates dreamed of big careers and changing the world. When I was asked what I wanted to do, I would often answer ‘Get married and have kids’. I…
Just after Christmas, I was moved back out of my single room. Pete and Courtney were visiting at the time. Unable to move my head, and with eyes that would not focus, I was still very unaware of my surroundings. Although I had now been in ICU for several weeks, I was completely unaware of…
Warning: This is an Ebenezer Scrooge ‘bah humbug’ style post. If you are feeling happy and excited about the New Year, I suggest you read no further. I am not looking for words of encouragement, sympathy or even understanding. These are simply feelings that I needed to own in order to deal with them and…
The only thing worse than an itch, is an itch you can’t scratch! On the 29th December 2011, Ali arrived with an unusual smirk on her face – a combination of pity and mild (maybe moderate) amusement. She walked over, looked at me, and told me she had some bad news. My kids, and the…
My Mum was an only child, born to very conservative parents. As a kid, life was pretty dull. As Mum had 3 children of her own, Christmas soon became her favourite day of the year. She loves everything about it – the decorations, the food (especially pork crackling), being surrounded by family and friends, sharing…
Over the first few days, word of my condition spread far and wide. A special friend, Jen, set up a support page on Facebook in my honour. It not only served as a place for people to leave me well-wishes and words of support, but also a place where friends could find information on my…
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I talk about having Autism in my life and other random stuff.
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My journey - Recreating my life
