BREAKTHROUGH

PROGRESS On the 1st January 2012, I started to move my head from side to side. Just a few centimetres each way, but it was voluntarily moving muscles in my body! Doctors told me that it was highly likely I would never move a muscle again. So needless to say, this was a big deal.…

Unsung Heroes

ICU at Canberra Hospital is an impressive ward. The staff there work in pretty stressful surrounds. Many patients in ICU are critically ill. Many are in intense pain. Hearing someone cry out in pain must be stressful for the staff caring for that patient, the staff working tirelessly to ensure the patient’s comfort. In ICU…

My Maternal Heart Breaks …… AGAIN

From as long ago as I can remember, I wanted to be a Mum. I completed high school at a highly academic girls school. Many of my classmates dreamed of big careers and changing the world. When I was asked what I wanted to do, I would often answer ‘Get married and have kids’. I…

The World is a Blur

Just after Christmas, I was moved back out of my single room. Pete and Courtney were visiting at the time. Unable to move my head, and with eyes that would not focus, I was still very unaware of my surroundings. Although I had now been in ICU for several weeks, I was completely unaware of…

Happy New Year???

Warning: This is an Ebenezer Scrooge ‘bah humbug’ style post. If you are feeling happy and excited about the New Year, I suggest you read no further. I am not looking for words of encouragement, sympathy or even understanding. These are simply feelings that I needed to own in order to deal with them and…

Nits!!!

The only thing worse than an itch, is an itch you can’t scratch! On the 29th December 2011, Ali arrived with an unusual smirk on her face – a combination of pity and mild (maybe moderate) amusement. She walked over, looked at me, and told me she had some bad news. My kids, and the…

The Season To Be Jolly

My Mum was an only child, born to very conservative parents. As a kid, life was pretty dull. As Mum had 3 children of her own, Christmas soon became her favourite day of the year. She loves everything about it – the decorations, the food (especially pork crackling), being surrounded by family and friends, sharing…

And So It Continues ……

 Over the first few days, word of my condition spread far and wide. A special friend, Jen, set up a support page on Facebook in my honour. It not only served as a place for people to leave me well-wishes and words of support, but also a place where friends could find information on my…

Letting Go Of Dreams

One of the hardest things about a new disability is letting go of dreams. I know we all give up dreams as our lives take different paths to those we had planned. And I know that I just need to create new dreams that are achievable for the ‘new us’. I grew up in a…

Groundhog Day

I have been procrastinating over posting this. This post has no clear theme or structure. It is just bits and pieces that went on day to day and feels a little messy. I guess it reflects my reality in those early days. On my 5th day in ICU, Steve brought the kids up to see…